Tuesday, July 29, 2008

Plateau, babies, binary systems

All-
So while I was thrilled to get some slight hearing (dial tones close up, loud music on one head phone)-- I was frustrated that I was not improving. Stuck on a plateau. I went to see Dr. Kassam and an Ear Nose Throat specialist (Dr. Hirsch). The news--- mostly likely: this is all I am going to get. Dr. Kassam thinks the nerve is dead. I said how is it dead if I can hear something? Isn't nerve working kinda like being pregnant? You either are or you aren't? I can't believe he started to discuss that there can be an in between for pregnancies. I cut him off before he started telling me about ectopic pregnancies or something else and got him back on topic. I asked, "Well, isn't it like the binary number system? You either are a ZERO or a ONE? He said basically yes-- and I seem to have a very low functioning nerve-- so there is hope it could make something of itself--- but that this would probably not happen.

Anyway, not great news.

My plans are to continue to get this fluid out of my head (I am now taking diuretics for this), a lot which is hanging around my right ear. And then to also start physical therapy with a PT who specializes in vertigo. Which I still have. Usually this is caused by a tramatized 8th nerve (not a dead one) I'm also going to see another ENT who can explain why I can hear a few things--- but the nerve is being treated as it's dead

Anyway, if this is the best it gets--- I'm still overall glad about the results. That being said, I'm going to be (very) cautiously optimistic and assume some of this fluid building on my right side is part of the reason my nerve is nervous and not at its healthy best.

I'll keep you posted on this crazy soap opera.

4 comments:

Wendy Wander said...

Hi Susan, yes,that is very disappointing news. Hopefully you doctor is wrong, but at least you know the worst case senario, and can now begin to move forward. What is with your doctor talking about pregnancy? Just his stupid ego needing to be right at the time? What a waste of your time at that important moment. How do people like that manage to have the smarts to get certified?

Anyway, I'm looking forward to seeing you at the beach soon.

W

Erica said...

Susan, we are so sorry to hear the latest news! Like Wendy, we hope the docs are wrong and you will regain more hearing. You are strong, and have a good attitude about it all.

We'll see you at the beach in a few days.

timboscifi said...

HI Susan, Tim here. I hope your doctor is wrong, like the one who thought MJ had some serious fatal illness when it was only a problem with her eyelid. Got to get a new guy/gal here who will help you out. It seems like if you can hear something, you may be able to hear more. Hope all gets better.

Tim

Unknown said...

Susan - good luck and hopefully a new specialist can help. This has got to be frustrating. Hey - how come I wasn't invited to the beach? I have been with the Kim family almost my entire life! :) Have fun with the family and tell Cassie and Carter that Colorado said hi.